Volunteering was his silver lining after MS diagnosis

Dan Kehler went into a deep funk after being diagnosed with Multiple Sclerosis (MS) in 2005. MS is a chronic, often disabling disease that attacks the central nervous system. Dan was only 49 years old when he was forced to quit the auto technician job he loved. Instead of working on cars, Dan began spending his days watching television. “After my MS diagnosis, I got very depressed,” said Dan.

Angel Dogs have been bringing a sense of being at home to patients at Madonna Rehabilitation Hospital for more than 10 years. Anxiety, fears, loneliness have been lessened by many individuals who have received visits or met an Angel Dog in the hall. Numerous patients and their families have been given a refreshing welcome change in routine and something different to look forward to during a day filled with therapies.

Angel Dogs have been bringing a sense of being at home to patients at Madonna Rehabilitation Hospital for more than 10 years. Anxiety, fears, loneliness have been lessened by many individuals who have received visits or met an Angel Dog in the hall. Numerous patients and their families have been given a refreshing welcome change in routine and something different to look forward to during a day filled with therapies.

His wife, Karen, was working as a nurse at Madonna and suggested that Dan check out the Angel Dog volunteer program. He had trained dogs before, but currently didn’t have a canine companion. During a visit to the local humane society, a beautiful golden retriever looked up at Dan. “Our eyes met and I knew he was the one,” said Dan, who named the three-month-old puppy Max. After months of training, Max and Dan applied and were accepted as an official Madonna Angel Dog team. The duo has become quite popular with patients, residents and staff. “Many of the folks on VAU/SN look forward to seeing Max and enjoy his tricks,” said Dan. Twice a week you can find Dan and Max making the rounds at the hospital. “Patients might not remember Dan’s name, but they sure know Max’s,” said Marla Buresh, volunteer resources coordinator.

Max is famous for his tricks – giving a high five, waving and playing dead – and isn’t shy about performing. “The pediatric unit is Max’s favorite; he loves the kids,” said Dan, who carries treats that people offer as a reward to Max.

“It’s been a silver lining after my MS diagnosis,” said Dan.

Volunteering at Madonna has greatly impacted Dan’s life. It’s rewarding for him to see the resolve of patients and watch their recovery progress. “After I started visiting Madonna, I realized I don’t have it too bad,” said Dan. “Many of these patients have been through so much.”

It’s the relationships they establish that fulfill this Angel Dog team. Dan shares several stories of Max — trotting in front of a little girl and motivating her to pedal a tricycle faster, a brain injury patient who responded for the first time in months when Max laid his head on her bed. And, he can’t forget the patient who initially resisted a visit from lovable Max, saying, “I don’t want to see no darn dog!” Dan gently encouraged the man to pet Max and by the end of their visit, the patient stated firmly, “Now, you bring him back.” The patient began requesting visits and saving scraps of food for Max. People enjoy interacting with Max and often say it alleviates the stress of missing their own pet.

It’s been equally therapeutic for Dan. “I love making people smile and shining some light into their life,” said Dan, as he tenderly stroked Max’s head. His four-legged friend wagged his tail in agreement.

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Do you think your pet might be a good fit for Madonna’s Angel Dog Program? It only takes a few steps to find out. 

Diaphragm Pacing System: A closer look

Mollee Hallet taps her finger at the photo on her cell phone – showing a beautiful salmon-colored strapless dress with tiers of organza billowing to the floor. She’s excited to wear the gown to her high school prom next month. “It’ll show off my neck,” said Mollee, smiling. It’s a bold move for the 18-year-old from Andover, Kan. For the first time in her life, Mollee won’t have a tracheostomy tube.

Mollee Hallett had a NeuRX DPS implanted to help her gain independence in her breathing. Mollee was born with Chronic Central Hypoventilation Syndrome and has relied on the trach and ventilator since she was four weeks old.

Mollee Hallett had a NeuRX DPS implanted to help her gain independence in her breathing. Mollee was born with Chronic Central Hypoventilation Syndrome and has relied on the trach and ventilator since she was four weeks old.

Mollee was born with Chronic Central Hypoventilation Syndrome (CCHS). Diagnosed at four weeks old, the high-risk newborn was hospitalized for four months. Early on, Mollee relied on a trach and ventilator to keep her alive.

By the time she was six years old, Mollee still had the trach, but was dependent only on the vent at night. Mollee has a mild form of CCHS where she breathes normally while awake, but hypoventilates during sleep. Her breathing becomes too slow or shallow to meet her body’s needs. “Mollee’s been hospitalized so much,” said her mother, Dusty. She’s nearly died a few times, too. But Mollee has a spunky attitude. “It’s what saved her,” said Dusty.

Throughout her childhood, Mollee wasn’t treated any differently. She actively participated in years of dance classes and loves playing softball. Mollee describes herself as strong, open-minded and independent. But the constant presence of the vent/trach duo has inhibited her lifestyle. “Some of my old vents weighed as much as 50 pounds,” said Mollee. Family vacations required bringing two vents – one for a backup. Sleepovers with friends had to be thought out well in advance. And, swimming was out of the question.

Frances Kleffner, a respiratory therapist and Mollee’s grandmother, researched the NeuRx DPS® and found Madonna. She felt it could make a dramatic difference in Mollee’s life. The device helps patients with CCHS breathe easier, live longer and in some cases, eliminate their dependence on a ventilator. “I thought Mollee would be a good candidate for it,” said Frances. Her granddaughter had to wait until she was 18 to be evaluated because the DPS implant is non-FDA approved for patients under 18.

Once approved for the pacer surgery, Mollee had mixed feelings. “I was like ‘Okay let’s do it!’” said Mollee, but admits she was apprehensive. Although it may sound strange, she said she is going to miss the trach. “I feel like I’m losing a part of me because I’ve had it most of my life,” said Mollee. “I’m often known as the girl with the thing in her neck.”

On March 6, Mollee elected to have the NeuRx DPS® implanted. The minimally invasive two-hour surgery was performed by Dr. Greg Fitzke with Surgical Associates at Saint Elizabeth Regional Medical Center in Lincoln, Neb. Mollee relied on tunes from country music artist Jason Aldean to calm her nerves. “You’ve just got to believe in yourself and remember the goal,” said Mollee.

Rebecca Wills, MA, BA, CRT-NPS, pulmonary program manager at Madonna Rehabilitation Hospital collaborated with colleagues at Saint Elizabeth’s and Dr. Fitzke to ensure a successful procedure for Mollee. “We’ve had the joy of helping to make a difference in Mollee’s life,” said Rebecca.

A few days after surgery, Mollee returned home to Kansas. Her body needs time to adjust to the implant before she returns to St. Elizabeth’s to participate in a sleep study. Once Mollee is safely sleeping all night, her trach will be removed.

Mollee can’t imagine going somewhere without carting a vent and has trouble visualizing herself without the trach.

It’s definitely going to be life-changing for me.

She’s diving back into school and social activities. First on the list – getting photographed in her beautiful dress at the Andover Central High School prom.

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NeuRX Diaphragm Pacing System

electrodesThe NeuRx DPS™ device, implanted during a minimally invasive surgery, helps individuals breathe easier by conditioning their diaphragm muscle through electrical stimulation. Madonna Rehabilitation Hospital is among a handful of institutions nationwide, and the only Nebraska rehabilitation hospital, that facilitates the DPS™ implantation and provides post-operative rehabilitation when indicated.

Candidates for the NeuRx DPS™ are patients with:

  • High level spinal cord injury resulting in dependence on ventilation
  • Bilateral intact phrenic nerves below the level of the spinal cord injury
  • Individuals with ALS who have phrenic nerve function and documented chronic hypoventilation.
  • Individuals with chronic central hypoventilation syndrome (CCHS)
  • General good health otherwise

For more information, contact Rebecca Wills at rwills@madonna.org.

The battle against Guillain–Barré syndrome

What began as an annoying foot tingle morphed into a medical nightmare for Roy Kelsey. On Wednesday, Sept. 5, 2012, Roy noticed his feet were numb and “going to sleep.” The 48-year-old worked Labor Day weekend cutting trees near his home in St. Joseph, Mo., and thought he’d pinched a nerve. A visit to his chiropractor didn’t provide any relief. By Thursday, the tingling sensation spread to Roy’s hands and the pain sent him to the emergency room at Heartland Regional Medical Center in St. Joseph, Mo. Doctors believed he was suffering from nerve damage caused by the physical labor and sent him home.

On Friday, Roy’s health was rapidly declining and by the time his doctor scheduled more tests at the hospital, he couldn’t stand. A spinal tap confirmed Roy had contracted Guillain-Barré syndrome (GBS). “I’d never heard of it before,” said Roy. His fiancé, Lana Robinson, and his family, researched the uncommon disorder in which the body’s immune system attacks its own nerves. “That’s when I learned I was a rare statistic,” said Roy. GBS is uncommon, affecting only 1 or 2 people per 100,000.1  Weakness and tingling in the extremities are usually the first symptoms. These sensations can spread swiftly and eventually paralyze the body – that was Roy’s outcome.

During his month-long hospitalization, Roy quit breathing twice and had to be intubated. “It was terrifying for Lana and my family,” said Roy. “I’m so grateful to be alive!”

When Roy was admitted to Madonna’s Long Term Acute Care Hospital (LTACH) on Oct. 8, he was tethered to a ventilator, trach and feeding tube. Roy communicated through grunting and slight head movements as nurses transferred him in and out of bed with a Vanderlift, a battery-operated lift system. A gregarious and active guy, Roy felt trapped in a bad dream.

Roy used the Lokmat to rebuild his leg strength and coordination after GBS left him paralyzed.

Roy used the Lokmat to rebuild his leg strength and coordination after GBS left him paralyzed.

“Seeing Roy when he first got here, I thought to myself, wow, this is probably as bad as it gets,” said Darin Forman, a registered nurse on LTACH, who himself is a GBS survivor. Despite his weakened state, Roy was dedicated to his daily therapy. The nursing and respiratory teams gradually weaned Roy off the ventilator and feeding tube – celebrating when he could breathe and eat independently. With each step, Roy moved closer to his main goal – to walk again.

Within four weeks, Roy’s arms and legs felt normal again. He transferred to Madonna’s Acute level and through a specially designed care program, his therapy intensified. “I kept telling everyone I am going to walk out of here,” said Roy. Using technology like the Moveo™, Proprio 4000™ and Lokomat®, restored Roy’s leg strength and coordination. In aqua therapy, his stamina and balance increased using the water’s resistance and ankle weights.

As an estimator and project manager, Roy relies heavily on his hands. In occupational therapy, tasks like folding clothes and frying an egg revived his dexterity. Recreational outings to play shuffleboard and air hockey provided social and physical outlets.

Cheerleaders through Roy’s recovery fueled his positivity. Darin, sharing his own fight with GBS, proved invaluable insight. “Darin was awesome and let me know what to expect,” said Roy. His family and Lana offered constant encouragement. Roy’s employer, Brooner Construction and Crane, is holding his job. Company executives visited Roy, upgraded his cell phone and added free service. “They’ve been incredible,” said Roy.

On Dec. 22, Roy was ecstatic to rejoin his family in Missouri. He can walk 1,000 feet aided by a walker, and plans to transition to a cane. Roy says his battle with GBS made him appreciate his loved ones. “Life’s too short – I got a nice Christmas present to go home early.”

1Source: MayoClinic.com

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