Hiking with hands

Ty Hockett suffered a spinal cord injury in a truck accident in 2009, resulting in paralysis. Ty worked hard to regain strength and learn adaptive techniques. Once Ty became more independent, he turned his attention to recreational activities he enjoyed before his accident. Ty soon realized that he could get back to navigating the outdoors. This video shows that Ty is not defined by his limitations, but rather exploring the outdoors in a different way – a handcycle. What a beautiful view!

Ty Hockett’s Story:

Ty Hockett was 17-years-old when he was riding in a pickup on a gravel road in his hometown of Smith Center, Kansas, with his girlfriend, Cortney, and two high school friends. Cortney, the driver, hit a pothole, and the Ford Ranger fishtailed sideways, blowing out the tires and crashing in a ditch.

Upon impact, Ty and Cortney hit their heads on the windshield and ejected from the vehicle. Their two friends escaped serious injury and called 911. Ty and Cortney were taken to Good Samaritan Hospital in Kearney, Neb., where they learned Cortney had sustained a mild traumatic brain injury and Ty had suffered a spinal cord injury.

It took seven hours of surgery to fuse bone from Ty’s hip into his neck to stabilize his spine and prevent further damage. After two weeks, the teens transitioned to Madonna. Cortney was discharged after a few weeks of therapy, but Ty would call Madonna home for the next two months.

“I was basically helpless when I got to Madonna,” said Ty. His positivity kicked in and he set goals with his Madonna care team toward regaining his independence. He was determined to give 100 percent in this therapy sessions.

Ty felt the turning point in therapy was when he could transfer independently to and from his wheelchair. “Honestly, when I completed that first transfer, that’s when I realized how far I’d come,” he recalls.

Once Ty became more independent, therapists turned his attention to activities he enjoyed before his accident through Recreation Therapy. A Ty soon realized that he could get back to turkey hunting with his dog Millie from his wheelchair. Madonna counselor Kipp Ransom also connected Ty with a past patient who no longer used his handcycle (a hand operated bicycle). The patient donated the cycle to Ty, which opened a world of recreational opportunities for him and Cortney, who were married in 2011.

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Children and adults with acquired physical disabilities as a result of traumatic injury or illness often are not aware of the availability and benefits of recreation and adaptive sports activities. Just as with able-bodied individuals, participation in recreational activities promotes physical health and wellness by increasing heart and respiration rates, facilitating muscle tone, maintaining optimal weight, and honing agility skills. These activities can also impact social and emotional wellbeing by providing interaction with peers, offering distraction from the stress of daily life, and providing individuals with a sense of personal accomplishment and satisfaction.

World Health Organization Standards

“We are continually faced with great opportunities which are brilliantly disguised as unsolvable problems.” – Margaret Mead

In almost every developed country in the world, healthcare systems have adopted the World Health Organization’s International Classification of Functioning, Disability, and Health (WHO-ICF) to label the challenges experienced by people with impairments and disabilities. The WHO-ICF was created over many years by experts around the world. The only developed country still fumbling with a variety of classification tools is the United States, and, I believe, the rehabilitation industry is remiss in not making a positive contribution to our country’s enlightenment. The paradigm of rehabilitation has eroded since the 1990s, from one of treatment of the whole person to a mechanical definition, which has been reduced to FIM scores, lists of comorbidities and vital signs.

Too often, we accept the definitions of rehabilitation that others, not experts in rehabilitation, foist on us. There’s the “rehabilitation ready” assertion by Medicare that a patient must be able to tolerate three hours of rehabilitation from day one in the rehabilitation hospital or unit. One doesn’t join a health club and perform three hours of exercise in the first visit. You build stamina over time to achieve that. Physiologically, a person who has spent the last five days lying in bed cannot be expected to undertake a schedule of demanding physical and cognitive expectations on the first day in rehabilitation. Consequently, if this hurdle cannot be overcome, the discharge direction is to a nursing home. How many of those patients are transferred to a rehabilitation hospital when they have increased stamina sufficient to withstand the requisite three hours of therapy? My guess is that very few do, thus assuring that they never have access to the expertise they need to resume their lives.

“Too often, we accept the definitions of rehabilitation that others, not experts in rehabilitation, foist on us.”

We are conducting a campaign to educate an insurance company in our region that expressly prohibits payment for cognitive retraining. What possible definition of rehabilitation could they have adopted? As a rehabilitation provider, it is difficult to understand how cognitive retraining could not be considered imperative in the rehabilitation program for someone who has sustained a brain injury or stroke. This type of payment denial is based on the assumption that what it means to be human is to walk, without regard for the person’s capacity to regain their speech, comprehension, personality and life role. We even had one insurance company disallow coverage for a patient with a spinal cord injury because he would never learn to walk.

I could go on indefinitely with antidotes like this, but all rehabilitation providers have experienced them. My point is that we need to use the concepts, the language, the knowledge of rehabilitation to educate the uninformed in every conversation, in every exchange with Medicare and with all other payers. We need to talk about life roles and goals and what is required to regain them. We need to talk about environmental and social challenges and factors associated with resumption of activities. We need to use the WHO-ICF language of biopsychosocial rehabilitation rather than the outdated medical model.

In this issue, we have provided a synopsis of the WHO-ICF. It is more than a classification system. It is a structure and concept fundamental to our work in rehabilitation. And it needs to become a greater part of our dialogue with insurers, CMS, every physician and every discharge planner. Most of all, it needs to be a central theme in our lobbying efforts to redefine rehabilitation as it should be.

Published in the AMRPA Magazine May 2012

By: Marsha Lommel, MA, MBA, FACHE
President and CEO, Madonna Rehabilitation Hospital

Recovering from a stroke: A family effort

Following a massive stroke, Ken Nollette’s family rallied around him and celebrated every small step of his recovery.

When asked to describe his wife, Ken Nollette smiles and types one word on his iPad — “bullheaded.” Kathy Nollette laughs and explains she prods her husband of 36 years down this long road of recovery for one reason — “I want him back.”

On Dec. 14, 2011, Ken woke up feeling sluggish, but attributed it to getting home late from a weekend hunting trip. During a phone call to his office, Ken’s voice began slurring, yet he assured the staff not to worry. As his voice deteriorated, concerned coworkers quickly drove out to Ken’s home in Juanita, Neb., and took him to the emergency room at Mary Lanning Memorial Hospital in Hastings, Neb. It was here Ken became a statistic — one of the 700,000 people each year who suffer a stroke.1

The stroke attacked Ken’s brain, scrambling his speech and rendering the right side of his body motionless. Ken, the outspoken patriarch of the Nollette family, was used to being in control. As a cattle manager for Gottsch Enterprises, Ken, 56, oversees several cattle yards in a multi-state region. Suddenly robbed of his speech and unable to eat or walk, he spent two weeks in the hospital before transferring to Madonna Rehabilitation Hospital.

Ken had no history of stroke in his family and neither he nor Kathy were familiar with stroke and its debilitating path. “It interrupted our lives,” said Kathy, who quickly assumed the role of primary caregiver for her husband.

Ken’s four children and five grandchildren became his motivation to recover. Amy Goldman, DPT, stroke program manager, explained that caregivers and family members play a crucial role throughout the post-stroke recovery process.

During his four months of inpatient rehabilitation, Ken’s progress was like a turtle – slow and steady. Ken relearned to brush his teeth, shower and dress – guided by his unaffected left hand. The Lokomat helped Ken strengthen his gait and endurance. Ken’s family visited regularly and celebrated each small victory. “I pray every night for help handling what we’ve been given,” said Kathy.

Speech remains the biggest challenge for Ken. His therapists introduced the iPad, a tablet computer, to help him communicate easier. When questioned about his speech, Ken frowned and said softly, but firmly, “Frustrating!” Rebuilding his vocabulary a word or two at a time was discouraging to Ken, but his family and therapists kept pointing out his progress.

“A stroke does not affect just the patient; it affects the entire family.”
Amy Goldman, DPT, Stroke Program Manager

From a caregiver perspective, Kathy said it’s hard to watch her formerly independent husband relying on others for help. “We all offer Ken our daily support,” said Kathy. She knows when to step in and anticipate Ken’s needs, too. “Little things, like blowing his nose, that’s something he just can’t do,” said Kathy. “I have to be his right hand because he doesn’t have one!” said Kathy, who walked outside the Madonna campus to let her emotions out. “I keep thinking, this is not forever.”

As a caregiver, Amy applauds Kathy’s approach. “Madonna offers support and education to caregivers by encouraging them to take time for themselves, build a support system, attend support groups and focus on maintaining their own health and wellness,” said Amy.

By April 13, Ken had transitioned to Madonna’s outpatient program where he continues to heal. “We’re staying in the onsite housing and it’s nice being so close to therapy,” said Kathy.

Smiling, Ken points to his t-shirt boasting the words “Most Valuable Grandpa.” Ken has every reason to celebrate. He can walk 400 feet with a walker, his right arm and leg are getting strong and he’s verbalizing new words everyday. It won’t be long until Ken returns to his grandpa role. “It’s my favorite job.”

1National Institute of Neurological Disorders and Stroke – www.ninds.nih.gov

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